The Dystonia Medical Research Foundation (DMRF) has special regard for the role of pets because of the inspiration and support they bring to the lives of those affected by dystonia.
Dystonia is a brain disorder, much like Parkinson’s disease. It causes extreme muscle spasms so intense that gait, balance, speech, and vision may be impaired due to the twisting, painful contortions. Dystonia is one of the three most common movement disorders, yet it is often misdiagnosed and patients can spend years without proper treatment.
In an effort to educate the general population about the difficulties faced by those with dystonia and the role that dogs play in many of their lives, in 2010, the DMRF launched a nationwide initiative called Dogs for Dystonia. Each year in February, the campaign brings together dog lovers to learn more about dystonia while helping people to raise awareness and funds for research. Supporters can also hold dog walks in their local communities throughout the year.
For over 40 years, the DMRF has been a steadfast leader in dystonia research, providing support for the well-being of those affected by this disorder and raising awareness. Because of our decades of work we have a greater appreciation for the wisdom shared by Roger Caras that “Dogs are not our whole life, but they make our lives whole”. This is certainly true for the families that will be featured on this blog. If you would like to be a guest blogger on this site, please contact the DMRF at dystonia@dystonia-foundation.org.
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